Our Focus

Raise Awareness 

Increase recognition and understanding of Carney complex including symptoms, diagnosis, and treatment options.

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Improve Standards of Care 

Support patients and providers with resources that guide effective treatment and long-term management.

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Advance Research

​Promote research that improves understanding, diagnosis, and treatment of Carney complex.​

Strengthen Community

Build connections among patients, families, and caregivers to foster support and share knowledge.

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Build Partnerships

Partner with researchers, clinicians, patients, and related organizations to advance understanding, improve care, and broaden access to resources and support for those affected by Carney complex.